tag:blogger.com,1999:blog-8174880937451768707.post3655088163129903507..comments2023-10-18T05:54:19.015-07:00Comments on Stronger After Stroke Blog (THE STROKE RECOVERY BLOG): Recovery is done in four phases.Peter G Levinehttp://www.blogger.com/profile/12585356059363005619noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-8174880937451768707.post-47974701168070005952014-06-29T10:16:09.911-07:002014-06-29T10:16:09.911-07:00It's true, it's always possible to get bet...It's true, it's always possible to get better. I had a stroke 5 years ago, and I never stoppes trying to insist and never give up, because, after all, I'm still alive and I want to have the best I can get!<br />Anonymoushttps://www.blogger.com/profile/09105701543641566534noreply@blogger.comtag:blogger.com,1999:blog-8174880937451768707.post-65146413764088248252014-06-17T11:26:34.612-07:002014-06-17T11:26:34.612-07:00Chronic stroke people can get 'community based...Chronic stroke people can get 'community based' speech therapy such as aphasia groups, participate in research, and pay for PT/OT. I'm still wondering if a physiatrist or neurologist is useful in this stage?Kadimahttps://www.blogger.com/profile/12547236988094240794noreply@blogger.comtag:blogger.com,1999:blog-8174880937451768707.post-7956729333483536232014-06-16T12:39:02.225-07:002014-06-16T12:39:02.225-07:00Thanks for such a nice clear way of describing the...Thanks for such a nice clear way of describing the stages.<br /><br />I have a few ideas about what a physician can do and I think some could do a lot more than they currently do. <br /><br />If they took more of a wellness approach they would make sure patients got ongoing services. They would work on making sure drug side effects were not adding to problems. They could make sure people at risk get to see a Psychologist/ dietician (etc.) to learn how to improve their health so they are able to make the best use of their physical therapy efforts.<br /><br />As new issues crop up they could be proactive about ordering a new set of therapy or even just a quick therapy assessment to encourage people to keep moving in the right direction. <br /><br />An encouraging "Good for you for working hard on your recovery." could go a long way toward keeping people engaged in their rehabilitation.. self designed or otherwise.Lindahttps://www.blogger.com/profile/11714725782520722613noreply@blogger.comtag:blogger.com,1999:blog-8174880937451768707.post-58767624993201147862014-06-16T11:39:14.581-07:002014-06-16T11:39:14.581-07:00Ah Peter, The 31 things I'm going to demand my...Ah Peter, The 31 things I'm going to demand my doctor does for me after my next stroke. And I don't care if they haven't been clinically tested. I want the kitchen sink thrown at stopping the neuronal cascade of death. http://oc1dean.blogspot.com/2013/03/what-i-am-going-to-insist-i-get-after.html<br />And yes Peter, I'm damned arrogant to think I might know more than my doctor.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-8174880937451768707.post-67686526089000767152014-06-16T08:58:23.380-07:002014-06-16T08:58:23.380-07:00What can they do? In some ways I think therapy is ...What can they do? In some ways I think therapy is the final prescription...what do we do now? I dunno...send 'em to therapy.Peter G Levinehttps://www.blogger.com/profile/13595198575349062833noreply@blogger.comtag:blogger.com,1999:blog-8174880937451768707.post-77013661096143482782014-06-16T08:30:34.026-07:002014-06-16T08:30:34.026-07:00This is where I think a large part of the problem ...This is where I think a large part of the problem of stroke recovery exists. There is nothing in there that your doctor is doing to help your recovery. It's all either therapists or the survivor. And I know that right now there is nothing in the standard of care for doctors to be doing.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-8174880937451768707.post-30904447045799499812014-06-16T08:03:53.724-07:002014-06-16T08:03:53.724-07:00In the subacute stage they didn't encourage me...In the subacute stage they didn't encourage me to "put the pedal to the metal", but only tried to discourage me by saying I had to accept being disabled. Which horrified me, because my mind made the connection: disabled -> not sexy -> redundant. But now after 5 years, I feel the pitbull inside of me keeps hitting a wall. I'm stuck in fight or flight, which makes my muscles in my affected arm and leg tense. They relax when I take psychological support though. Than I let go of over thinking how I walk. I had a bleed (subarachnoid) and I remember your blog about bleeds averaging better recovery than blocks. And that bleeds often write statements like "and then my spirit kicked in", which is BS according to you, because there is less overall brain damage. I've been waiting for years now for my spirit to kick in, but it still hasn't happened yet. Tamarahttps://www.blogger.com/profile/07359000064787191210noreply@blogger.com